A GoFundMe campaign has been launched with the aim of raising €100,000 for a farmer’s two sons, who have a rare genetic disease.
Noah (6) and Rowan Gately (4) were diagnosed with Duchenne Muscular Dystrophy (DMD) on January 21st, 2020.
DMD is a progressive neuromuscular disorder, which causes the muscles in the body to become weak, primarily in the hips and legs, with no known cure, to date.
Noah and Rowan Benson-Gately Support Group is a community response to create a fund to support the boys, while also raising awareness of the disease.
The entire community of Dysart, Co. Roscommon and further afield, has rallied around the family, with sporting, television and musical personalities lending their support, by sending a series of videos.
‘Born perfectly healthy and perfectly gorgerous’
In a post on the page, their parents, Bianca Benson, and Sean Gately, said: “Both boys were born perfectly healthy and perfectly gorgeous.”
“We are delighted to be raising two sons, two brothers, two best friends. They have brought such joy and happiness to our lives.”
“However, January 21st, 2020 brought devastating news. Both boys are suffering from a rare genetic disease, Duchenne Muscular Dystrophy (DMD).”
“This is not the life we had hoped or planned for our children, just a different one! The road ahead will be tough, but, with the love and support of our families, our friends and our community, we hope to make the journey a little easier for Noah and Rowan.”
“We have been truly touched by the enormous outpouring of compassion shown to us, and wish to extend our thanks to each and every one of you, for being here to support us.” the post added.
Cycle
A family fun cycle, with the option of undertaking a 5km or a 10km, will take place in Dysart, Co. Roscommon at 12pm this Saturday (August 2nd).
The organisers of the event stressed that participants must wear helmets and Covid-19 guidelines must be adhered to at all times.
Information
For further information or to make a donation, please click here.
Image source: Noah and Rowan Benson-Gately Support Group / Facebook
